If anyone else would like to share their story it can easliy be included just email me with your story and i can include it with the others already sharing =]
My Story
I have known from birth that I have had Turners Syndrome as when I was born I had puffy hands and feet and a webbed neck. This aroused the doctors suspicions that I had TS as the doctor was a specialist in its diagnoses. I had a blood test to see what was wrong and this then took a week but it soon confirmed that I had Turner Syndrome.
Steph's Story
I'm Steph, I'm 16 years old from Middlesbrough, England. I was diagnosed with TS when I was just 5 years old so I was on injections for 11 years. I was taken off injections a couple of months ago so I'm just on tablets now. I remember the hospital visit very well because it was over easter and I distinctly remember my dad bringing my easter eggs up to me. They did blood tests, scans allsorts to me and came up with the conclusion that I had Turner Syndrome.
Tanya's Story
My Story I was diagnosed with Turners syndrome at 14 and a half which is very late. Normally it is diagnosed at birth or within the first few years of life. With modern technology it is now possible to diagnose ts in the womb. At the school the nurse had sessions where you could make an appointment if you were worried about anything. So we went along about my height and lack of development.
Lisa's Story
My name is Lisa. I'm 17 years old and live in the West Midlands. I was diagnosed with the condition Turner Syndrome when I was born; I had swollen hands and swollen feet.